[Poster] Therapeutic education of adults with idiopathic hypersomnia

Réseau d'information sur les maladies rares des hôpitaux Cochin et Hôtel-Dieu
Réseau d'information sur les maladies rares des hôpitaux Cochin et Hôtel-Dieu

[Poster] Therapeutic education of adults with idiopathic hypersomnia

04/03/2022

On the occasion of the 15th International Rare Disease Day, the rare disease expertise platform of the AP-HP university hospital group. Center – University of Paris proposed to all the reference centers to produce posters explaining the therapeutic patient education (TPE) programs implemented for 2 years. Regularly new posters will be published on this site.

This first poster is dedicated to the therapeutic education program developed by the reference center for rare narcolepsy and hypersomnias concerning adults with idiopathic hypersomnia.

General public summary :
Idiopathic hypersomnias are rare sleep disorders that can be confused with fatigue. They are very debilitating on a daily basis. Our program aims to better deal with it on a daily basis.

Poster HTD ETP hypersomnie idiopathique
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French national reference center for rare narcolepsy and hypersomnias The Sleep and Vigilance Center (SVC) of the Hôtel-Dieu hospital in Paris is a department of the Assistance Publique-Hôpitaux de Paris (AP-HP). It is part of the Paris Centre University Hospital Group: Cochin, Hôtel-Dieu, Broca, Pôle médical de l'Hôtel-Dieu, and it is a university center of [...]
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