On the occasion of the 15th International Rare Disease Day, the rare disease expertise platform of the AP-HP university hospital group. Center – University of Paris proposed to all the reference centers to produce posters explaining the therapeutic patient education (TPE) programs implemented for 2 years. Regularly new posters will be published on this site.
This poster is dedicated to the therapeutic education program developed by the reference center for rare adrenal diseases : Acute adrenal insufficiency e-ETP.
General public summary :
The prevention and early treatment of acute adrenal insufficiency are mainly based on the ability of patients to recognize risk situations and to adapt their treatment. The CAP SURRENALES application, developed with EDUSANTE, is available on the web at www.cap-surrenales.edusante.fr and on google play by searching for CAP SURRENALES. It aims to reinforce the achievements of therapeutic education workshops and consultations with the endocrinologist.